Scott’s Story

 

This Is CRPS

Scott’s Story

I have CRPS. I broke my right hand at work while performing my job duties. I worked the rest of the day, and then got it checked out. It was broken. The break later turned into CRPS. I have had it for two years. I have been to four doctors, who have each confirmed my diagnosis. The pain started in my right hand, and has since traveled to the entire right side of my body, from head to toe.

I have to use a cane to help me. Some days I can’t get out of bed. I wear shorts all the time because I can’t stand anything to touch my body on my right side. I only wear shirts when we go out. I wear bedroom shoes because my feet feel like they’re on fire. Some days, I need help with everything, including using the bathroom and bathing. I have had nerve blocks, which didn’t work. I attended physical therapy at two different locations but made no progress; in fact, it made the pain worse.

On a usual day, I get up, get dressed (only wearing my shorts), most of the time with help, take my medicine, and I go about 20 feet to my chair and sit there all day, beside going to bathroom. I have to sit in my chair all day because of the pain, brain fog, and fatigue from CRPS. The pain lasts 24/7. I don’t sleep well. I have developed sleeping disorders due to the CRPS. That’s my life now, everything just repeats itself over and over. I never ask “Why me?” I say “Why not me?” I believe that God gave me CRPS for a reason. I just go with the punches. – adapted from Scott

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I never ask “Why me?” I say “Why not me?” I believe that God gave me CRPS for a reason. I just go with the punches.